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Engaging longitudinal cohort participants in a research priority setting process for the Raine Study

The Raine Study is a long-running study looking at the health and well-being of a group of Western Australian families for over 35 years. Participants are at the heart of the study, shaping its research direction and communication. While participants have previously contributed to research grant development, they had not been directly involved in setting the Raine Study’s overall research agenda.

Citation:
De Paolis M, Abdul S, McKenzie A, ……. Cayley G, Bucks RS, et al. Engaging longitudinal cohort participants in a research priority setting process for the Raine Study. Res Involv Engagem. 2025;11(1).

Keywords:
James lind alliance; Longitudinal health research; Multigenerational cohort study; Participant engagement; Priority setting partnerships; Research agenda setting; The raine study

Abstract:
The Raine Study is a long-running study looking at the health and well-being of a group of Western Australian families for over 35 years. Participants are at the heart of the study, shaping its research direction and communication. While participants have previously contributed to research grant development, they had not been directly involved in setting the Raine Study’s overall research agenda.