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Research
Altered attainment of developmental milestones influences the age of diagnosis of rett syndromeThis study describes the attainment of gross developmental milestones and regression, and assesses the relationships between genotype and age at diagnosis.
Research
Just what the doctor ordered: moving forward with electronic health recordsTo provide dietitians with information on the proposed introduction of electronic medical records in Australia and New Zealand and discuss potential benefits...
News & Events
Guest article: How my son found perspective after a life-changing car accidentJosh Forde, 18, with mum Karen, who shares how her fears turned to
News & Events
Baby Dreaming and Infant Mental Health Awareness WeekEmbrace @ The Kids Research Institute Australia recognises Mental Health Awareness Week, running until June 18, with the theme of ‘bonding before birth’.
News & Events
Leading youth mental health researchers welcome sector fundingLeaders of Western Australia’s youth mental health research sector from Embrace at The Kids Research Institute Australia have welcomed the state government’s $420 million boost to mental health spending in its 2023-24 budget.
News & Events
Bad news days: How to limit your child’s exposure to trauma in the mediaThe world can be a scary place for children. Wars, terrorist atrocities, natural disasters, bushfires, famine and shocking crimes are all regular features in the news we consume – not to mention the almost blanket coverage of the Covid-19 pandemic.
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Research
The use of cross-jurisdictional population data to investigate health indicators of child maltreatmentTo investigate the prevalence, trends, and characteristics of maltreatment and assault related hospital admissions and deaths among children
Research
Use of equipment and respite services and caregiver health among Australian families living with Rett syndromeThis study assessed factors that could influence equipment and respite services use among Australian families caring for a girl/woman with Rett syndrome and...
Research
Atypical presentations and specific genotypes are associated with a delay in diagnosis in females with Rett syndromeThere is often delay between onset of Rett syndrome symptoms and its diagnosis, possibly related to symptom presentation or socio-demographic factors.