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Early motor impairments have been reported in children with neurodevelopmental disorders (NDD), but it is not clear if early detection of motor impairments can identify children at risk for NDD or how early such impairments might be detected. Our aim was to characterize early motor function in children later diagnosed with NDD relative to typically developing children or normative data.
A severe neurodevelopmental disorder mostly affecting girls.
Two The Kids Research Institute Australia researchers recognised for their role in building a global database for CDKL5 deficiency disorder are now helping to set the scene for clinical trials of much-needed potential treatments.
While individual diseases are rare, as a group, rare diseases are common. Recent estimates suggest that between 3% and 6% of the world’s population are affected by rare disease.
Early intervention is being touted as the key to preventing lung damage in children with cystic fibrosis.
Hope ahead for children with CF, as life expectancy continues to grow thanks to research.
Our showcase projects are a demonstration of how we at The Kids Research Institute Australia are committed to a new way of working.
Learn more about all of the Clinical Trials, Platforms & Cohorts at the Wal-yan respiratory centre.
Cystic fibrosis (CF) is the most common life‐shortening genetic disease affecting children.
Caregivers of individuals with neurodevelopmental and chronic health conditions require health literacy (HL) skills for the long-term management of these conditions. The aim of this rapid review was to investigate the efficacy of HL interventions for these caregivers.