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Lived experiences of the diagnostic assessment process for fetal alcohol spectrum disorder: A systematic review of qualitative evidence

Early assessment and diagnosis of FASD are crucial in providing therapeutic interventions that aim to enhance meaningful participation and quality of life for individuals and their families, while reducing psychosocial difficulties that may arise during adolescence and adulthood. Individuals with lived experience of FASD have expertise based on their own lives and family needs. Their insights into the assessment and diagnostic process are valuable for improving service delivery and informing the provision of meaningful, person- and family-centered care. To date, reviews have focused broadly on the experiences of living with FASD.

Development of a Model of Care resource for FASD in the justice system

This article describes the development of a Model of Care resource to support youth involved with the justice system where a neurodevelopmental disability such as Fetal Alcohol Spectrum Disorder is suspected. Service staff within the Youth Justice sector were engaged in an iterative process of resource development over a 9-month period.

Evaluation of the Fetal Alcohol Spectrum Disorder Hub Australia website

To evaluate use and utility of the Fetal Alcohol Spectrum Disorder (FASD) Hub Australia website. 

Professor Carol Bower

Senior Principal Research Fellow; Director, FASD Research Australia

Nine out of ten young people in detention found to have severe neuro-disability

Nine out of ten incarcerated youth examined by The Kids researchers as part of a ground-breaking study had some form of neuro-disability.

Making FASD History in the Pilbara: celebrating International FASD Awareness Day

To mark International FASD Awareness Day, The Kids will launch a series of health promotion videos that feature local Aboriginal community members.

New national tool to help improve FASD diagnosis

Expected to shine a light on hidden harm from alcohol use during pregnancy, Australia’s first national FASD diagnostic tool has been developed by the Institute.

1 in 3 young people in detention has alcohol related brain damage

About a third of young people in youth detention in Western Australia have Fetal Alcohol Spectrum Disorder (FASD), data has found.

Making FASD history in the Fitzroy Valley

The Make FASD History campaign, led by community researchers and The Kids Research Institute Australia, has made huge inroads into prevention, diagnosis and therapy.

The Kids researcher awarded support funding

A The Kids Research Institute Australia researcher has been awarded $10,000 in State Government research support funding.