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Research
Variation over time in medical conditions and health service utilization of children with Down syndromeVariation over time in medical conditions and health service utilization of children with Down syndrome.
Research
Increased longevity and the comorbidities associated with intellectual and developmental disabilityThe contributors, all world experts in their fields, also discuss what we can learn from the presence of co-morbidities.
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Huge hospital burden for kids with intellectual disabilitiesNew research from the Telethon Institute has shown that children with an intellectual disability are up to 10x more likely to be admitted to hospital.
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Relationship between family quality of life and day occupations of young people with Down syndromeThis study aimed to explore relationships between family quality of life, day occupations and activities of daily living of young persons with Down syndrome.
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Application of Population-Based Linked Data to the Study of Intellectual Disability and AutismData linkage is the bringing together of specific datasets from different sources using demographic information on individuals within a population.
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Caring for a child with severe intellectual disability in China: The example of Rett syndromeIntellectual disability affects more than 1.5% of the population of children in developing countries yet we know little about the daily lives and support...
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Community participation: Conversations with parent-Carers of young women with Rett syndromeIn this paper, the issue of people with profound intellectual and multiple disabilities facing significant challenges to participating in their community is...
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Day occupation is associated with psychopathology for adolescents and young adults with Down syndromeIn comparison to those young adults attending open employment from 2009 to 2011, those attending day recreation programs were reported to experience...
Research
Functioning and post-school transition outcomes for young people with Down syndromeOur analysis shows that functioning in activities of daily living was related to post-school day occupation. Current health status and behaviour were found...
We aim to ensure that high quality outcome measures are available to evaluate treatments and services for children with disability rigorously. We aim to translate our research into resources to support families, carers and clinicians.