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News & Events

That goosebump moment

The Kids successfully pushed for the mandatory fortification of flour in Aus with the vitamin folic acid for the primary prevention of neural tube defects

News & Events

Video: Top 10 tips to healthy happy kids

Paediatrician and Director of The Kids Research Institute Australia, Professor Jonathan Carapetis, shares his top 10 tips for health happy kids.

News & Events

RHD a notifiable condition

Western Australian doctors are now required by law to report all cases of rheumatic heart disease.

News & Events

Are you interested in cystic fibrosis research?

We are looking for 6 new members to join our Child and Adolescent Cystic Fibrosis Consumer Reference Group of WA

News & Events

The Kids Research Institute Australia shares in new infrastructure funding

The Telethon Kids Institute welcomes the State Government's new $1.2 million funding initiative to support WA's research institutes.

News & Events

Watch the video of our community lecture

One of the 50 most influential scientists in the world today, Professor Leroy Hood, delivered The Kids Research Institute Australia Community Lecture on Tue December 1st.

Assessment and management of nutrition and growth in Rett syndrome

We developed recommendations to assess and manage issues relating to poor growth and weight gain in Rett syndrome, including consideration of gastrostomy.

Experience of gastrostomy using a quality care framework: The example of Rett syndrome

We investigated our data from family questionnaires to see how feeding difficulties related to age, the type of MECP2 mutation, and the use of gastrostomy.

Level of purposeful hand function as a marker of clinical severity in Rett syndrome

We developed a measure of hand function, and then investigated relationships between hand function, type of MECP2 mutation, age and severity of symptoms.

Parental experiences of scoliosis management

We investigated what parents thought about the ways to manage scoliosis and what they thought they needed to help them better manage their daughter's scoliosis.