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Staying physically active is an important part of a healthy lifestyle. ActiveRett is a dedicated resource for helping families support their child with Rett syndrome to keep active.

Each family needs to select the appropriate types and levels of activity that suit their own individual needs and circumstances.

Through InterRett we collect information on individuals with Rett syndrome on a global level. If you are a participant you can complete your questionnaire here.

News & Events

Thanks for everyone who have contributed to and participated in this wonderful event to raise much needed funds to support Rett Syndrome research!

News & Events

Taylor is a remarkable young woman with Rett Syndrome who is leading an active country life with the support of her family and the local community.

The Sore Throat Study is looking for healthy children and young people to take part in a new study investigating sore throats, also known as pharyngitis, and how best to prevent them.

The leadership in action section of this handbook includes three modules you can access from the links below. How do you make a change? This module

Privacy settings help you to control who can access your social media profiles and other information you have stored online or on your devices.

Passwords not only protect your information, but also the information you have on your phones, computers and other devices about your friends and

Once you are in a leadership position within your school, other students may feel they can approach you to talk about their problems and to seek help