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Our study investigated the quality of measurements obtained using the Rett Syndrome Gross Motor Scale.
We compared parent/carer-reported physical activities with the number of steps counted by an accelerometer in girls and women with Rett syndrome.
We developed recommendations to assess and manage issues relating to poor growth and weight gain in Rett syndrome, including consideration of gastrostomy.
We investigated our data from family questionnaires to see how feeding difficulties related to age, the type of MECP2 mutation, and the use of gastrostomy.
We investigated the occurrence of altered pain sensitivity as well as how these altered reactions to pain were observed during daily life.
We wanted to find out whether mothers with a child with Rett syndrome who were more physically and mentally healthy had particular characteristics.
Read about the research fellows at the Children's Diabetes Centre, Martin de Bock, Aveni Hayes, Ashleigh Lin and Marie-Anne Burckhardt.
Read about the research nurses and assistants at the Children's Diabetes Centre.
Read about the students currently undertaking their PhD as a part of the Children's Diabetes Centre.
Read about the Research Focus Area Leads at the Children's Diabetes Centre.