Marie Blackmore
Senior Research Officer
PhD
marie.blackmore@thekids.org.au
Marie Blackmore is a senior research officer in Child Disability and a member of the Wal Yan Respiratory Research Centre. She works with families of children with disability, clinicians, and other researchers to find ways of improving the quality of life of children with disability. She has conducted research on respiratory health in children with cerebral palsy, including developing a respiratory risk checklist for parents and guidelines for respiratory management in cerebral palsy. She is also currently working with research teams to measure health-related quality of life in children with disability, to identify pain in children who cannot self-report it, and to provide evidence-based information for families of children with Prader-Willi syndrome. She holds a PhD from The University of Western Australia.
Published research
Psychometric Properties of the EQ-5D-Y-5L for Children With Intellectual Disability
The EQ-5D-Y-5L is a generic preference-based measure of health-related quality of life for children. This study aimed to describe the distributional properties, test-retest reliability, and convergent validity of the EQ-5D-Y-5L in children with intellectual disability (ID).
Can RESPiratory hospital Admissions in children with cerebral palsy be reduced? A feasibility randomised Controlled Trial pilot study protocol (RESP-ACT)
The most common cause of morbidity and mortality in children with severe cerebral palsy (CP) is respiratory disease. BREATHE-CP (Better REspiratory and Airway Treatment and HEalth in Cerebral Palsy) is a multidisciplinary research team who have conducted research on the risk factors associated with CP respiratory disease, a systematic review on management and a Delphi study on the development of a consensus for the prevention and management of respiratory disease in CP.
The cost of respiratory hospitalizations in children with cerebral palsy
To establish the burden of respiratory illness in cerebral palsy (CP) on the Western Australian health care system by quantifying the costs of respiratory hospitalizations in children with CP, compared with non-respiratory hospitalizations.
Education and Qualifications
- Bachelor of Science (Honours) – The University of Western Australia
- Doctor of Philosophy – The University of Western Australia
Awards/Honours
- 2002 - Aldo and Jeanne Scaglione Prize for a Translation of a Literary Work, Modern Language Association of America
- 2002 - National Translation Award, American Literary Translators’ Association
Active Collaborations
- Reducing RESPiratory Hospital Admissions in Children with Cerebral Palsy: A Feasibility Randomised Controlled Trial (RESP-ACT) with Perth Children’s Hospital
- Identifying and Addressing Respiratory Health Inequities for Māori Children and Young Adults with Cerebral Palsy with Starship Child Health and KidzFirst Children’s Hospital, Auckland New Zealand
- EQ-5D-Y and children with intellectual disability with EuroQol Research Foundation, Curtin University, University of Technology Sydney, Murdoch Children’s Research Institute, and Perth Children’s Hospital.
- Detecting pain in kids who can’t tell you it hurts: PainChek® for children with disabilities with Perth Children's Hospital and PainChek® Ltd