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A validation study of a modified Bouchard activity record

We compared parent/carer-reported physical activities with the number of steps counted by an accelerometer in girls and women with Rett syndrome.

Physical and mental health of mothers caring for a child with Rett syndrome

We wanted to find out whether mothers with a child with Rett syndrome who were more physically and mentally healthy had particular characteristics.

Family satisfaction following spinal fusion in Rett syndrome: a cohort study

This study evaluated sixty-one families' satisfaction following spinal fusion in girls with Rett syndrome.

How researchers have made surgery for babies

The Kids Research Institute Australia’s Perioperative Medicine team is helping to change global and local practice by finding safer and gentler ways to both undertake surgery, and care for kids and families afterwards.

Inching towards answers for children with ultra-rare CDKL5

The Kids Research Institute Australia is helping scientists across the globe inch their way towards clinical trials which could, at last, provide relief for children and families dealing with CDKL5.

Unlocking the mysteries of the immune system to tackle childhood cancer

The The Kids Cancer Centre is at the cutting edge of developing new, safer ways of treating children with cancer using their own immune systems.

How the pandemic has shaped the mental health of our kids

Researchers went into 79 WA primary and secondary schools in 2020 and found increased levels of emotional distress among students and families.

More than a good night's sleep: why a preterm baby's body clock may unlock the secret to life-long health

A simple set of eye masks and ear plugs – an inexpensive solution explored in a successful pilot study by The Kids Research Institute Australia, together with the Child and Adolescent Health Service – could hold the key to better outcomes for our tiniest bubs. Now, a nationwide clinical trial is testing the idea

EYI helps community spotlight dental health

Communities in the Central Great Southern region have known for years that dental health is a major issue for the smallest residents of their towns.

Giving kids with CF a chance at a longer, healthier life

COMBAT CF is one of two long-standing international trials which have resulted in new early intervention options helping to reduce progressive lung damage in kids living with CF.