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Current studies

To improve the health of the community through immunisation and prevention of infectious diseases, we are conducting clinical trials of vaccines.

The CDKL5 Disorder

One of the many reasons for setting up the International CDKL5 Disorder Database was to learn more about this condition.

Planning opportunities for uptime

Embrace the potential of children with Rett Syndrome by exploring how to plan opportunities for uptime, maximizing their engagement and participation in meaningful activities.

Resources

These resources include the best available evidence about the course of Rett syndrome and its management as well as practical information about family associations, specialist clinical centres and links to relevant websites.

Search our databases

Our Searchable online database allows you to create graphs like the one below.

Research on activity in Rett syndrome

Our research team have done 4 studies to find out how to increase activity in children and adults with Rett syndrome.

Research

Priorities for improved management of acute rheumatic fever and rheumatic heart disease

The results suggest that timely injection and patient education are priorities for managing ARF and RHD, particularly focusing on child-to-adult transition care.

Research

Measuring early childhood development in multiple contexts: the internal factor structure and reliability of the early Human Capability Index in seven countries

Findings support the aims of the early Human Capability Index in being adaptable and applicable for use within a range of low and middle income countries

Research

General practitioners’ perceptions of their communication with Australian Aboriginal patients with acquired neurogenic communication disorders

GPs report difficulty recognising acquired communication disorders and their lack of prioritising assessment and treatment of communication ability after brain injur

Research

A Qualitative Exploration of Electronic Image Sharing Among Young People: Navigating the Issues of Conformity, Trust, Intention, and Reputation

This research sought to explore the main factors affecting young people's image-sharing behaviors, particularly in the context of peer relationships and norms